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© Isabel Corthier/MSF

Community-Led Monitoring

Photo: © Isabel Corthier/MSF

While the notion of health monitoring is not new, community monitoring—where recipients of care themselves monitor the quality of health services—is an evolving field. Communities can fill in gaps, verify national- and/or site-level accounts of health service quality, and ensure that services meet the needs of recipients of care. Communities are entitled to know their rights and to have an active role in ensuring that they are being upheld.

Baptiste, S., Manouan, A., Garcia, P. et al.

Community-led monitoring (CLM) is an evidence-informed mechanism that can support HIV programme managers and service providers to identify and address local challenges in accessibility, acceptability, affordability and quality of prevention and treatment commodities, services and programmes. CLM involves local, community-led organizations of people living with HIV, networks of key populations and other community entities that systematically:

  1. Monitor and report on how services, programmes and policies are implemented and experienced at the level of communities and recipients of care
  2. Compile and analyse the data collected to identify opportunities for improvement
  3. Review evidence with service providers, programme managers and policy makers to jointly develop and implement solutions to identified problems

Since 2022, the IAS Community-Led Monitoring programme has been working with a range of stakeholders to support a better understanding of CLM and more adoption of well-defined and resourced CLM to improve the quality and effectiveness of health programmes, including HIV. 

It does so by:

  • Increasing understanding of CLM methods and outcomes, with access to key materials, to support quality CLM implementation
  • Advocating for a shared global vision in the HIV response on the importance of CLM for HIV and health services more broadly
  • Developing a framework for measuring CLM progress on the road towards outcomes and impact
  • Convening HIV CLM implementers about quality and accountability in health and development programming

The IAS CLM Programme is guided by a Steering Committee and supported by activity-specific working groups.

Contact

[email protected]

IAS CLM programme Steering Committee members

Primary focal point Alternate focal point Affiliation Country/region Stakeholder group
Beatrice Ajonye Hanningtone Mutabarura International Community of Women Living with HIV Eastern Africa (ICWEA) Uganda CLM implementing organization
David Kamkwamba Felix Angasi Network of Journalists Living with HIV (JONEHA) Malawi CLM implementing organization
Innocent Laison Alain Manouan ITPC – West Africa West Africa CLM implementing organization
Harry Madukani Edna Tembo Coalition of Women Living with HIV (COWLHA) Malawi CLM implementing organization
Mtisunge Mikaya Yon Antonio Malawi Network of AIDS Service Organizations (MANASO) Malawi CLM implementing organization
Kenneth Mwehonge Joan Kilande Coalition for Health Promotion and Social Development (HEPS) Uganda CLM implementing organization
Ndivhuwo Rambau Ngqabutho Mpofu Ritshidze South Africa CLM implementing organization
Talibita Moses Nkumba University Uganda Researcher
Alister Munthali Independent consultant Malawi Researcher
Kenneth Ngure Jomo Kenyatta University of Agriculture and Technology / Department of Global Health, University of Washington Kenya IAS Governing Council
Siobhan Malone Bill & Melinda Gates Foundation USA Donor

IAS researcher-CLM workshop working group members

Focal point Affiliation Country of residence Steering Committee member
Erin Eckstein Office of the US Global AIDS Coordinator and Health Diplomacy (OGAC) USA No
Ingrid Katz OGAC USA No
David Kamkwamba Network of Journalists Living with HIV (JONEHA) Malawi Yes
Innocent Laison International Treatment Preparedness Coalition (ITPC) – West Africa Côte d’Ivoire Yes
Krista Lauer ITPC – Global USA No
Keletso Makofane University of Pennsylvania USA No
Talibita Moses Nkumba University Uganda Yes
Alister Munthali Independent consultant Malawi Yes
Kenneth Mwehonge Coalition for Health Promotion and Social Development (HEPS) Uganda Yes
Nelson Otwamo NEPHAK Kenya No
Ndivhuwo Rambau Ritshidze South Africa Yes
Alana Sharp Georgetown University USA No
Gang Sun UNAIDS Switzerland No
Edna Tembo Coalition of Women Living with HIV (COWLHA) Malawi Yes
Elvis Temfack Africa CDC Ethiopia No

IAS AIDS 2024 CLM pre-conference working group members

Focal point Affiliation Country of residence Steering Committee member
Beatrice Ajonye International Community of Women Living with HIV Eastern Africa (ICWEA) Uganda Yes
Ayibatari Burutolu PEPFAR USA No
Vuyiseka Dubula (alternate: Keith Mienies) Global Fund Switzerland No
Erin Eckstein OGAC USA No
Brian Honermann amFAR USA No
David Kamkwamba Network of Journalists Living with HIV (JONEHA) Malawi Yes
Julieth Karirao Ministry of Health and Social Services, Tanzania Tanzania No
Siobhan Malone Bill & Melinda Gates Foundation (BMGF) USA Yes
Imelda Mahaka Pangaea Zimbabwe AIDS Trust (PZAT) Zimbabwe No
Rosemary Mburu WACI Health Kenya No
Mtisunge Mikaya Malawi Network of AIDS Service Organizations (MANASO) Malawi Yes
Kenneth Ngure Jomo Kenyatta University of Agriculture and Technology / Department of Global Health, University of Washington Kenya Yes
Yvette Raphael Advocacy for Prevention of HIV and AIDS (APHA) South Africa No
Andy Seale WHO Switzerland No
Laurel Sprague UNAIDS Switzerland No

With support from: